Stories of Lost Children
Little Aussie Battler
by Tara, Melbourne, Victoria, Australia
After 2 beautiful healthy daughters, I desperately wanted a son, so after carefull planning for 6 months (and reading many books)I found I was pregnant. I had no doubts in my mind that it was a boy, but from the very start I felt anxious that something was very wrong. I had an ultrasound at 12 weeks and was told baby was fine. I had the next one at 19 weeks and found that baby had huge kidney's and bladder. After chosing against termination we had 2 lots of fetal surgery to try and salvage what little kidney function he had left. His heart was taking the tole and they expected him to have heart failure during birth. At 36 weeks gestation on the 13th of July 2000, Cameron Allen was born naturally and alive. He was diagnosed with a rare syndrome, Peter's Plus. He was blind in one eye, had 3 large and approxamatly 12 small holes in his heart, renal failure, immature lungs, perforated anus, dwarfism and half a cerabellum with servere seizure activity. But he was our son and he was perfect. He spent his first 3 months in hospital(NICU)and then came home to his family. He was on a lot of medication, and had to be fed by nasal gastric tube, but he did learn to smile and giggle and bring so much joy into our lives. In January he went back into hospital for seven weeks. He was regressing, his neuroligist telling us that his brain wasn't growing and his seizures were less controlled by his medication. He kept getting pnemonia. Cameron came home for 4 precious days where he died from a seizure that shut down his body. It was March the 3rd 2001 at 1.28 a.m. when his respiratory monitor sounded and told us that this time he had left us for good. It has been 7 months and not one day has gone passed that I don't think of my special little boy that fought so hard to live so he could get to love us as we so dearly love him.
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