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Stories of Lost Children

Baby Dylan
by B.B., Milton, NH, U.S.A.

Hi. I just wanted to share what happened with my baby boy. I have a 5 year old and for Christmas 2001, all he wanted was a little brother or sister. Well his wish came true and on Christmas Day I told him that my husband and I were having another baby. He was very excited.

Then, after a long pregnancy with some complications, on June 28, 2002 Dylan was born just as beautiful as could be. But he was having difficulties breathing so he was taken to another hospital and put in the NICU. We were there for about 5 weeks when the doctors said they could no longer help my baby, so we had him transfered to another hospital. He was there for less than a week and they figured out he had what is called Infantile Marfan Syndrome which has bad affects on the heart. After the short stay there, we were able to bring Dylan home and had him home until he got sick in November. That hospital stay was short; he was there for 4 days and then we were sent on our way home.

Dylan had to go in for sugery on his heart on December 12, 2002. The surgery went great and he recoverd well. Then on the 17th of December at 2 in the morning, I was woken up by the doctor saying "BETH DYLAN HAS GONE INTO CARDIAC ARREST AND HE MIGHT NOT MAKE IT" and then she ran out of the room. I got up and called my husband (he thought since Dylan was doing so good it was safe to go back to work). He got to the hospital in under an hour (we live 2 hours away) and then it was just a waiting game. At last, at about 9 in the morning, we could go in to see him. He looked horrible; he was on life support so his heart could recover from the arrest.

Well we waited and waited and his heart was not getting any better, so after 6 days on the machines we let our baby rest. He was in my arms we he went to God. I honestly believe he is all better; no more pain. Dylan passed two days before Christmas and that holiday that is supposed to be filled with joy will never be the same for anyone in my family. We all miss Dylan so much. We are burying him this week and I feel the best part of me is being buried with him.

We all love and miss you baby. Bye for now until we all are together again.

Love Mommy, Daddy and your big brother Nathan


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